Hi, my name is Joshua Scoble, everyone calls me Josh—you can too! Thank you for visiting my very own Web site—isn’t it awesome! Many people who love me contributed to it, now we can get the information out to the whole world.

If you are visiting this Web site, Fibrodysplasia Ossificans Progressiva (FOP) may have somehow touched your life. And I want to thank you for taking the time to learn about a very rare genetic disorder. There are less than 700 confirmed cases of FOP worldwide.

Now onto a little bit about me--I am three years old and was diagnosed with FOP when I was only three months old. FOP is a very rare inherited connective tissue disorder. Specifically, this disorder causes my body’s skeletal muscles and soft connective tissue to undergo a transformation into bone, progressively locking my joints in place and making movement difficult or impossible.

For more information about FOP please refer to the IFOPA Web site at www.ifopa.org.

News & Events

TODAY Show and Joshua's debut on Thursday October 15! 

We will be using a new format this year for our Basket Raffle/Chinese Auction.  The new format will allow us to expedite distribution of the winning items!  Last year we had a huge assortment of items----over 80 baskets!!!! 

We are selling Keystone jar candles (please note these are local orders only!  In lieu of purchasing candles – make a donation.We are offering a variety of scents and sizes.  The candles can be purchased in two different sizes:
26oz. for $15 or 64oz.for $25
more >

For Media, Corporate or Sponsorship Inquires please