Four-year-old Joshua Scoble was born with a genetic disorder called FOP (Fibrodysplasia Ossificans Progressiva).FOP is a rare genetic disorder that affects about 700 people WORLD WIDE. Basically when you have FOP your muscle turns to bone, and that bone then will attached to any existing bone and cause joints to lock or freeze up leaving him unable to bend at his joints. In 2007, researchers were able to identify the gene that causes FOP. Identifying the gene is a huge step when trying to find a cure. Dr. Kaplan, the leading FOP doctor, plans to continue with his research until he finds a cure for FOP. In fact a cure is now under development. But in order to keep working on a cure they need money for research. My hope is to get public awareness out about this genetic disorder so people feel generous enough to make a donation, because without donations they cannot continue the research that is necessary for finding a cure.
Lots of new and exciting things are happening . . . My family has set up my very own non-profit organization called Joshua’s Future of Promises. My awesome family created this wonderful organization in an effort to raise funds for Fibrodysplasia Ossificans Progressiva (FOP) research, as well as, to help support families affected by FOP. Both of my websites are still a good place to check on me and find out information on all the new events my non-profit organization is planning. Please be sure to check them out at: www.JoshuasFOP.com and of course, www.BingoForACure.com.
Right now, my Aunt Chrissy is busy organizing my 66th annual Bingo For A Cure! event, being held on March 23, 2014, at the Allentown Fairgrounds, Agri-Plex Hall. For more information click here!
The Bingo event is being sponsored by the Emmaus 4th Alarmers. All of the proceeds generated from our Bingo For A Cure! fundraiser will go directly to Joshua’s Future of Promises which benefits the IFOPA (International Fibrodysplasia Ossificans Progressiva Association). We anticipate a crowd of 800 people again this year!
Will you help us find a cure for FOP? Please consider making a donation again this year for our 2014 Bingo For A Cure! Please refer to the next page to see the numerous ways you can help be a part of finding a cure!
Any contribution is greatly appreciated! Please remember you can mail your donation to or drop it off at: Buss Paint & Wallpaper Attn: Joshua’s FOP 327 Main Street, Emmaus, PA, 18049. Checks can be made payable to: Joshua’s Future of Promises.
If you have any other questions please feel free to contact Chrissy at 610-349-8479 or via email firstname.lastname@example.org. Thank you for your support and we hope to see you at our 4th annual Bingo For A Cure! on March 18, 20121!!!
Upcoming Fundraising Events
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