Hi, my name is Joshua Scoble, everyone calls me Josh—you can too! Thank you for visiting my very own Web site—isn’t it awesome! Many people who love me contributed to it, now we can get the information out to the whole world.

If you are visiting this Web site, Fibrodysplasia Ossificans Progressiva (FOP) may have somehow touched your life. And I want to thank you for taking the time to learn about a very rare genetic disorder. There are less than 600 confirmed cases of FOP worldwide.

Now onto a little bit about me--I am two and a half years old and was diagnosed with FOP when I was only three months old. I was the youngest diagnosis to date. FOP is a very rare inherited connective tissue disorder. Specifically, this disorder causes my body’s skeletal muscles and soft connective tissue to undergo a transformation into bone, progressively locking my joints in place and making movement difficult or impossible.

For more information please refer to the IFOPA Web site at www.ifopa.org.