Hi, my name is Joshua Scoble, everyone calls me Josh—you can too! Thank you for visiting my very own Web site—isn’t it awesome! Many people who love me contributed to it, now we can get the information out to the whole world.
If you are visiting this Web site, Fibrodysplasia Ossificans Progressiva (FOP) may have somehow touched your life. And I want to thank you for taking the time to learn about a very rare genetic disorder. There are less than 700 confirmed cases of FOP worldwide.
Now onto a little bit about me--I am three years old and was diagnosed with FOP when I was only three months old. FOP is a very rare inherited connective tissue disorder. Specifically, this disorder causes my body’s skeletal muscles and soft connective tissue to undergo a transformation into bone, progressively locking my joints in place and making movement difficult or impossible.
For more information about FOP please refer to the IFOPA Web site at www.ifopa.org.
We are thrilled to announce that Bingo For A Cure! 2011 and all future fundraising events in honor of Joshua Scoble will now be sponsored by:
Joshua’s Future Of Promises!(Joshua’s FOP!)
Joshua’s FOP! is a non-profit organization set up by Joshua Scoble’s family in an effort to raise awareness and funds for Fibrodysplasia Ossificans Progressiva (FOP) research, as well as to help support families affected by FOP. FOP is a rare genetic disorder that causes your muscles to turn to bone. Joshua Scoble is a 4-year-old little boy who was born with FOP. With your continued support a cure is within reach! A treatment/cure is currently under development!
I just want to clarify things: We will continue to have our www.BingoForACure.com web site as well as we are in the process of setting up a new website for Joshua’s Future Of Promises! The new web site is currently under construction but should be up and running shortly so please be sure to check it out in the upcoming weeks www.JoshuasFOP.com
Reminder----Coins For A Cure!-----Joshua’s 4th Birthday is on July 20th…this is our Coins For A Cure date! If you have collected any coins or have any coins that you would like to donate to our Coins For A Cure! They can be dropped off or mailed to Buss Paints. All Coins For A Cure! donations will go towards FOP research unless you specifically ask for the Coins to go directly into Joshua’s personal Piggy Bank!
As usual donations are always appreciated! Checks can now be made payable to: Joshua’s FOP! or Bingo For A Cure! and can still be mailed to Buss Paint & Wallpaper, 327 Main Street, Emmaus, PA 18049
News & Events
Upcoming Fundraising Events
- August 2010 - Pepsi/Giant Contest Get ready to Vote for Joshua’s Future Of Promises!
- September 19, 2010 Racing for a Cure! (Sunday)
- October 9, 2010 Dinner! Dancing! & Drinks! For FOP! (Saturday)
- October 2010 Dates TBA) Keystone Candle Fundraiser
- March 27, 2011 Bingo For a Cure! (Sunday)
For Media, Corporate or Sponsorship Inquires please